The meeting with wheelchair services went pretty well, far better than I had expected, the O.T. had a totally different attitude, not sure if it was due to my emails or not, and the rehab engineer (who I’ve known for ages) was great, they will probably end up offering me a decent chair, maybe . . . → Read More: Wheelchair Services – Update 2
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I am having trouble getting a suitable, or in fact any, wheelchair from wheelchair services, I have done a lot of research and found the cheapest suitable option to be a Sunrise Medical Quickie F55 power chair, this with the necessary adaptations will cost over £8000! So I am asking you to . . . → Read More: Please consider donating to help me buy a power chair I have had a reply from Ms.Bush, who I had asked for temporary batteries for my old chair until our meeting, here it is - I have checked with the repair service engineers who have looked at alternative temporary batteries, and the possibility of just having power to the controller to operate tilt/recline was . . . → Read More: WCS – Update 1 Well here we go again, another NHS department, another arrogant budget watcher in charge of my case, this time I will call her Ms.Bush. I was supplied a Storm Power chair many years ago (1996?) by the wheelchair assessment centre, within the past few years I have used it less and less due to . . . → Read More: A new fight – Wheelchair Services Well things have been going very well, no problems to report with my care package from CHC, they have handed control to my District Nurses who will arrange any future updates or assessments. It was quite a hard and long struggle but everything seems this way when dealing with the NHS, I will admit . . . → Read More: CHC – Update and Case Closed Well the meeting has been and gone and I have a reasonable care package until September, when it will be reviewed again. I will post more about the meeting in a future post but the main thing is they agreed to me having a registered nurse, for now. This post is about privacy and . . . → Read More: Privacy and a brief update Welcome to my blog, this first post is to introduce myself and give some general background of why I started the blog. I am 35 years old and have Duchenne Muscular Dystrophy, I have been receiving care in my own home funded by the Continuing Health Care (CHC) department of my local PCT, CHC . . . → Read More: First post – An introduction |
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