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I had another meeting with wheelchair services on Thursday, this time I invited my neuromuscular advisor along too, mainly so she could see how meetings like this work and how wheelchair services assess someone. They brought in an Invacare TDX SP for me to sit in so they could take measurements and work out . . . → Read More: Wheelchair Services – Another meeting I have made a few enquiries regarding Wheelchair Services adapting private chairs, all have hit a brick wall, the last person I asked was the secretary to the chief executive of NHS Gloucestershire, I can’t go much higher although I will try, below is the letter of reply regarding this -
Not . . . → Read More: Wheelchair Services – No adaptations to private chairs Wheelchair Services have contacted me again to arrange another visit in roughly two weeks time, they are going to bring an Invacare TDX SP and a rep from Invacare with them, while this chair isn’t perfect it’s a big step up from the Spectra they had originally decided on. The lesson here is NEVER . . . → Read More: Wheelchair Services – Update 3 The meeting with wheelchair services went pretty well, far better than I had expected, the O.T. had a totally different attitude, not sure if it was due to my emails or not, and the rehab engineer (who I’ve known for ages) was great, they will probably end up offering me a decent chair, maybe . . . → Read More: Wheelchair Services – Update 2
I am having trouble getting a suitable, or in fact any, wheelchair from wheelchair services, I have done a lot of research and found the cheapest suitable option to be a Sunrise Medical Quickie F55 power chair, this with the necessary adaptations will cost over £8000! So I am asking you to . . . → Read More: Please consider donating to help me buy a power chair I have had a reply from Ms.Bush, who I had asked for temporary batteries for my old chair until our meeting, here it is - I have checked with the repair service engineers who have looked at alternative temporary batteries, and the possibility of just having power to the controller to operate tilt/recline was . . . → Read More: WCS – Update 1 Well here we go again, another NHS department, another arrogant budget watcher in charge of my case, this time I will call her Ms.Bush. I was supplied a Storm Power chair many years ago (1996?) by the wheelchair assessment centre, within the past few years I have used it less and less due to . . . → Read More: A new fight – Wheelchair Services Well things have been going very well, no problems to report with my care package from CHC, they have handed control to my District Nurses who will arrange any future updates or assessments. It was quite a hard and long struggle but everything seems this way when dealing with the NHS, I will admit . . . → Read More: CHC – Update and Case Closed Welcome to my blog, this first post is to introduce myself and give some general background of why I started the blog. I am 35 years old and have Duchenne Muscular Dystrophy, I have been receiving care in my own home funded by the Continuing Health Care (CHC) department of my local PCT, CHC . . . → Read More: First post – An introduction |
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